1.01.2019

Resolutions To Ignore And Embrace When You Have MS




I love New Years, a holiday dedicated to glitter and gold, to getting dressed up and drunk and making out at midnight. It’s so ridiculously hopeful to believe the incoming year is going to be better, your best yet, when the logical part of you knows full well you’re gonna start the first day of that year with a splitting headache and barf in your hair. It’s even more deluded to expect better days when you’ve got a chronic progressive illness like Multiple Sclerosis. But here we are, liquored up on optimism (and liquor). 


I'm ready for you, 2019.

At the end of the year it’s natural to take stock of what we’ve accomplished and what’s left to do. When it comes to living with MS, it’s hard not to look back at the past and assess the damage. It can be harder still to look hopefully at an uncertain future. One where many of us are only daring enough to quietly ask the universe that we just don’t get worse.

When we do find ourselves ballsy enough to ask for more, we might be motivated by the feeling of running out of time. Bucket List items pile up with the pressure to do all the things that require strength and vitality 'while we still can'. 

But what’s so great about Bucket Lists and New Years Resolutions anyway? For many, these lists are filled with the things we think we should do, and not the things we actually want to do; the fantasy versions of our lives that feed our egos and let Instagram know just how cool we are.  

Buckets are for washing floors and occasionally vomiting into. They are poor vessels for the safe carriage of our most precious hopes and dreams.

You don’t need a bossy list to remind you of your unmet potential. That’s what parents are for. If you have a chronic illness like Multiple Sclerosis, I’m here to sift through some of the most popular resolutions; to figure out which ones are worth the Bucket List and which ones you can put on the Chuck It List. And if you don’t like it, that’s cool. Having MS should be an automatic pass on all the bullshit things you never wanted to do anyway.


2019 Resolutions: Bucket or Chuck it?


Learn To Meditate: Bucket
MS is stressful. And painful. And exhausting. Meditation can help relieve stress, the perception of pain, and fatigue. I’m a smart person and at least an average breather. So, why is it so hard for me to just close my eyes and move some air? Because, anxiety. Which is precisely why this is the year I’m actually gonna figure this out. 


This session happened Jan 17 and was my attempt at a resolution last year. My own mother just told me "thinking about stuff is just as good as meditation". By "stuff" she means shopping. Someone please keep me accountable.


Skydiving: Chuck It
A classic Bucket List item; they should call it sky-dying, because it’s basically a dress-rehearsal for a terrible and unnecessary death. I am well acquainted with the feeling of free-falling already, thank you very much. 

Alternative: Watch Alive in my centrally-heated apartment while enjoying some non-human based snacks.


Drink More Water: Bucket
It’s tempting to turn into a camel when dealing with a nagging MS bladder. But not getting enough H20 can worsen fatigue and lead to bigger problems than peeing your pants. UTI’s suck, can cause even more incontinence, and infections can lead to pseudo-relapses that can be difficult to recover from. The good news is that Drink More Water is the laziest, easiest resolution ever. If you wanna put something on a list that you can actually accomplish while feeling like a smug wellness expert, start carrying your glittery pink S’well everywhere, and talk annoyingly about how getting your 64 ounces has literally changed your life. 

Change Your Diet: It’s Complicated.
If you’ve got a chronic illness you’ve definitely had someone scream in your face about a miracle food-based cure. There are a tonne of plans that claim to positively impact MS, but there is no universally agreed upon diet. There’s exciting research happening in this area, but if you’re thinking about trying Swank, Wahls, Keto, OMS or whatevs, remember that 65% of vegans eat Burger King when they’re drunk. So. 


Learn a Language: It Depends.
Cognitive function can be a concern for people with Multiple Sclerosis, and one of the best ways to make your brain stronger is to learn a new language. Then again, we’ve all heard that English is the hardest language. If you’re still reading this, then congratulations. You already speak the hardest language. Even if you flunked high school English, you’re probably still pretty good. 

Alternative: Watch a foreign movie. Don’t worry. There are subtitles. Oh, you don’t even want to do that? That’s what I thought. 

Start Flossing: Bucket
Having MS means blaming all my problems on brain damage, but it turns out you can still get cavities when you have a chronic illness, and the only thing worse than having MS is having MS and needing a root canal. Plus, repeated use of prednisone can mess up the bones that support your teeth.   

See a Sunrise: Chuck It.
You know what’s better than a sunrise, right? Fucking sleep. Nerve pain and needing to pee, as well as 7 thousand other MS-related things, could already be contributing to insomniac nights and narcoleptic days. If you have MS, you need sleep more than your average bear. We heal when we sleep, and lack of quality z’s can contribute to problems of cognition, fatigue, balance, pain and bitchiness. 

Alternative: Re-watch Before Sunrise, and eat two bags of Sunchips. 

Life hack: This is a sunset. It's basically the same thing.


Exercise More: Bucket
Fatigue and muscle weakness can provide easy excuses for not prioritizing exercise when you have MS; and frankly, I look like an idiot wearing a Fit-bit. I know this because some confused Normal recently asked me why I wear one. Just because I use mobility aids to get around doesn’t mean I can’t have fitness goals, Joel. Measuring my steps helps me recognize MS trends. Not like cool, Chanel fanny-pack trends, more like personal disease progression trends. 

Climb A Mountain: Chuck It
I said exercise more, not exercise crazy. I don’t know why anyone would want to climb a mountain. I don’t even want to climb the stairs. Did you know it can cost upwards of $30k to climb Mount Everest, and you could DIE? 

Alternative: Literally anything that doesn’t cost money to be cold and maybe die. 


Stop Smoking: Bucket
Boo. Hiss. I hate you. I know. You already know smokers are jokers, and if it were easy to quit you’d already be doing it. I didn’t want to be the one to tell you, but apparently neither does your doctor; because according to some reports he’s afraid of you. But here’s why you should consider it. Smoking can make MS disease progression worse. Smoking can hasten the time it takes to go from relapsing remitting MS (RRMS) to secondary progressive MS (SPMS). The reallgood news is that quitting may delay MS progression. 



Sure, smoking looks cool, but it's just too risky.


Join A Club: Bucket
Feelings of loneliness and depression are 12 times more common in persons with MS. Loneliness can have as difficult and dangerous an impact as the worst of what Multiple Sclerosis can do. If you are struggling, look for resources. If you aren’t struggling, reach out to those who are, and protect yourself by investing in relationships and building your own social capital. 

Write A Book, Go Back To School, Take An Exotic Trip: Bucket
If you have MS, you got a raw deal. Let your dx give you permission to prioritize doing the thing you’ve always wanted to do. Don’t just put your dreams in a crappy old bucket. Realize that Someday isn’s a real day, and put your goals on project status.

Happy New Year, Trippers. What does 2019 have in store for you? 











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16 comments :

  1. Very good advice. You area very good writer, girl!

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  2. Love your blog. Thanks for your continued thoughts on the MonSter. Happy New Year!

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    1. Thanks for reading, Lisa. Happy New Year to you!

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  3. Can I tell you the other thing a Fitbit is miraculous for? Silent alarms. To remind you to take your meds. It's a godsend, I tell you!

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    1. Yes! Also great for showing your doctor just how badly insomnia is messing up your life.

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  4. I love reading your blog articles! I think you and I have the same exact sense of humor.I have had difficulty with New Year's Resolutions for many years now due to the fact that examining what I wasn't able to do can be super depressing. Huge fan of lists, and I love your frank honesty.

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    1. Thanks for reading, Michelle. I'm glad I can make you laugh.
      Yes, it's always better to make lists of the things we can do.
      xa

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  5. Love love love this! Happy New Year to you and yours Ardra - and I'm going to re-commit to meditation in 2019. I actually know how to do this and managed to let it slide after a cranky MSy 2018. On my list again.
    Keep up this amazing work ~~~
    Barbara

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    1. Happy New Year, Barbara. Keep me posted about your progress with the meditation!

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  6. I vowed to give up sarcasm but I soon realized I need it to breathe. ��

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    1. I hear you. It's hard to change what's in our DNA.

      Thanks for reading Collena!

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  7. Resolved to read an entire article on Facebook. Check!)

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  8. I super enjoyed this post and will keep it handy for inspiration and support. I've been fortunate to have cleared much of my BL when I was still healthy enough. No, I've never jumped out of a plane - that's just dumb, though indoor skydiving was fun. This year, along with the regular stuff - eat healthy, exercise more, sleep better - I'll attempt to learn Italian. No trip to Italy in the cards, but I'll be happy making new friends in Little Italy! Happy New Year Ardra. Ciao!

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    1. Despite my comments about language, I am a card-carrying polyglot myself. I figure there are people who speak multiple languages and people who just wish they spoke multiple languages without having to actually do the work. I learned Italian on Rosetta Stone. It took me two years but it was the most rewarding part of my trip to Italy to be able to have real conversations with people. Currently I am loving the Memrise app. Good luck to you!

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